I know I've mentioned Evan giving us hugs before... I just think it's so great that I can't stop talking about it! Here is a picture of him giving his mommy a big hug. We LOVE you too, Evan!
What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
5 comments:
AAWWW you are so sweet Evan!!
Hugs,
Crystal and Eva
Love it! And love the new site!
So excited to see you and everyone in just a few more weeks! YAY YAY YAY!
Love your new blog Evan! 17 more days until the conference, hope to see you guys there!
I really love the new site. Looks great! And the hugs, ah... it melts my heart. I want one and I've never even met Evan. He is such a cutie and I hope he continues these hugs forever. I only wish we were going to the conference because I'd be lined up every day for a hug from Evan (he probably doesn't hug strangers though, does he?).
That's a sweet picture!
Love Jennifer
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