Hi mommy! (such an intense look for a little guy)
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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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Blog Archive
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2007
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September
(21)
- Camp Prime Time
- Recent Pictures
- Update on Reuben
- Jenny McCarthy & Autism
- Big Moment!
- Pookie's New Room
- Rocking Chair
- "Do those play music?"
- Updates on friends
- Pictures from last weekend...
- Evan likes...guacamole??? AND other neat tricks
- Prayers for Caleb & Reuben
- Weekend Update...
- Max's Mommy in the News
- Glasses, Take 2
- Gabe is a big brother!
- Anonymous Comments
- The Fair, Part 2
- Glasses, the patch, AND hearing aids--Oh my!
- Evan's Faux-Hawk
- So Un-Fair
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September
(21)
4 comments:
It looks like you all had a wonderful time at camp and met some new friends. Wish the weather would have been a little warmer. It was nice to hear your voices again over the phone to let us know that you had arrived home safe and sound. I can hardly wait to see what creative things you will put together for Evan's room. Love ya and see you soon! Grandma & Grandpa Key
Love those photos...and wow that second one! He and Max could be brothers!
We are sooooooooooooooooooooooooo excited to have you here next weekend. Max won't stop talking about it...crazy kiddo! :)
BE HEALTHY!!!
Love, Amy and Max
Very cute!!!
Crystal and Eva
Camp looked brilliant, very pretty view of the mountains.
How cute is the picture of Evan and his daddy asleep...gorgeous!
love Lesley and Amélie xx
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