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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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November
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- Elfed
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- First Snow of 2007
- The Bee Movie
- Two Bottles
- Washoe
- Remember when you had this much energy?
- Evan ate three times today!
- Carrot Snot
- November is Prematurity Awareness Month
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- The "Opposite" of Eating...
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3 comments:
Oh Evan where did you find all the energy!!!???? You are adorable I love it. It also looks like you were bopping to the music at some points...LOL!
Hugs,
Crystal and Eva
That was perfect music for a traveling man, a little man that is. Evan, you need to share some of that energy with Grandma. And Grandpa could use some of that extra stuff too.
We love you,
Grandma Key
Love, love, love it! And such perfect music...made me laugh!
Love, Amy and Max
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