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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
That was adorable I was working on a video like that for Eva I am not quit done, I guess great minds think alike..LOL!
Happy New Year,
Crystal and Eva
Happy New Year to you all
hugs the Chan family xx
I viewed the video many times yesterday & then forgot to leave a thought. I loved it, as usual. I just played it again and thinking about how much growth Evan has made and all the changes in these past months. From curls to a Daddy's cut (so...cute), from crib to big boy's bed. Learning to eat food by mouth and standing, climbing, and pushing anything that moves. Best of all is the signing back to mom & dad. I can hardly wait to see what comes next. It has been a very busy time for Mr. Evan.
Much Love from Grandpa & Grandma Key
Dear Evan, Sarah & Jeremy, I love The Year in Evan Photos! You are doing such a great job of capturing the many phases of Evan's life. We are so happy to be able to share them with you. Love, Lynn, Jim, greatgrandpa/ma Wilkins
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