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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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2008
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May
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- Kick Ball
- Our Memorial Day Trip
- You know you live in the sticks when...
- We Have a Pair of Hooters
- Grandpa Key
- Mother's Day
- Walker Video (Read Previous Post First)
- Evan Will When Evan is Ready...
- The Dentist, Signing "Daddy"(?), and Pre-school--O...
- Pictures!
- Happy Mother's Day from Crystal & Eva
- Evan's New Skills
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May
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5 comments:
WOOO HOOO!!!! :) Love, love, love it! Thanks for taking a video...so fun to see him in action! :)
Happy Mother's Day Sarah! :)
That is so wonderful, Eva is the same way she doesnt want to use hers either, I hope she does soon. Keep up the great work Evan!! I also love how Jeremy is signing to him that is so great to see.
Hugs,
Crystal and Eva
Evan, Great job! Will you come and mow my lawn? You can push my lawn mower now. Love Grandpa Key.
Great job, Evan! I think Dad might want to change from sandals to hard toed shoes. LOL
Wow! All I can say is Wow! Your Grandma and Auntie Jen are so proud of you. We have watched your walking video several times and it made us think of our home movies of your mommy riding her bike and also the skiing home movies. It's a keeper Evan!
Love, Grandma and Auntie Jen
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