CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
7 comments:
thats so cute i could just picutre him now taking off luckly not cold like it is hee your in summer we r in winter
How funny is he?!? I love it. And what a cute little behind :)
OH MY GOSH THAT IS JUST TO FUNNY!!!
Hugs,
Crystal and Eva
How cute!! Go, Evan! Just make sure you don't head out the door like that! :-)
xo
Leslie & Katie
Dear Little Evan,
Grandma can see that the bear theme in your bedroom is getting to you. Go bare, Go!
As I have heard - A picture IS worth a thousand words! So cute.
So precious!! Love the picture!!
Brian, Sarah, and Caleb Hlebiczki
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