Evan is sick again. Last night was a rough one--he woke up at 11 pm with a low fever and didn't go back to sleep until 2 am. We had planned on keeping him home from preschool all this week, to minimize the chances of him getting sick before his surgery on December 2nd (this is the urology surgery and CI candidacy MRI and BAER, rescheduled from October because of illness). Oh, the best-laid plans...
I'm reviewing the events of the past week to see where he would have picked it up from. He was at preschool last week. I took him out shopping on Saturday and Sunday, but was careful to disinfect all the touchable parts of the shopping carts. I did catch him yesterday chewing on one of his shoes, but that seems awfully fast to come down with symptoms.
Hopefully with lots of rest he'll get over this in time to keep his surgery appointment (we can always hope, right?).
What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
2 comments:
We sure hope that Evan will get well in time for his scheduled surgery that is coming up. It seems like children can never be well when they need to be, or so it was with you girls. Someone always got sick right before we were to leave. That's just the way of it. We look forward to seeing you all on Thanksgiving Day!
Love, Grandpa & Grandma Key
Get well soon, Evan. Happy Turkey Day!
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