What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
5 comments:
So Sweet! Caleb loved it too! He sat right next to me and watched it. I love the pic of him asleep on his sit and spin. So Darling!
Loved it! Thanks for posting.
Very cute, I used one of the same songs for Eva's video. I heard it in the car and knew I had to use it.
Hugs,
Crystal and Eva
Great video! :-)
Thanks for sharing with all of us out here in blogger land! So many great moments were captured!
Hugs to you all!
Kristi
How much you have grown Little Evan! Grandpa and Grandma watched the video a few days ago and didn't leave a comment, but I just watched it again and no doubt many more times, but just tell that mommy how much everyone appreciates her time and thoughtfulness to create these momments to treasure.
Love, Grandma
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