Two of my favorite things...
Daddy and a light!
Reading daddy's mind: please don't let go now, please don't let go now...
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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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6 comments:
It cracks me up how much these kids love lights. I hope daddy's head is ok and you did not snap it back at him..LOL!
Hugs,
Crystal and Eva
HA HA I didn't know that the love of lights was mutual among all of our friends! Too cute! How's daddy's head?
God Bless,
Brian, Sarah, and Caleb Hlebiczki
This made me laugh because my husband uses a light like this to cut our son Micah's fingernails, and Micah loves it!
I've been meaning to post a comment for a while... Micah is six months old and has CHARGE also. We live in Atlanta now, but my husband and I lived in Ellensburg for a year and half. That was nine years ago, but we loved it and really miss it.
I enjoy your blog and reading about Evan's adventures!
-Amy
Love, love, love the relationship these two have...soooooo adorable! :) And these photos...well, they are just screaming to be scrapbooked and kept forever. Love 'em!
Love the father/son relationship! Maybe I should say father/son/cat relationship. LOL
ha ha! Love it!
-Shannon in Austin
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