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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
Very cute, Eva has a small Dora one but its to small for her folder to fit in for school so we just got her a bigger one.
Hugs,
Crystal and Eva
Little Evan, Grandma is going to have to start calling you Big Boy! You are so cute with your little mini-pack. What are you carrying to school in your little pack? Are you still taking apples to your teachers? My students bring me little bottles of orange juice and cheese sticks. Mmm...good stuff.
How cute is that?!?! I love the picture! So cute!
God Bless,
Brian, Sarah, and Caleb Hlebiczki
Well the pack is very cute but I think his little jacket, jeans & shoes are even cuter! What a stylin' boy - Stacy & Clinton would definitely approve.
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