The Life of Evan...: What Evan's Been Up To

Lots of Sit-n-Spinning in the great outdoors

Chocolate pudding tasting (not bad for daddy's first attempt at "making" instant)

Window licking (glass is kind of bland--I much prefer the taste of a good screen)

Visiting with friends (today I got to play with Burke)

What is CHARGE???

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

The Life of Evan...

Tuesday, July 8, 2008

What Evan's Been Up To

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What is CHARGE???

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