Love the pictures! Evan you're amazing, such a great job! I'm showing your photos to Tate right now, he's giggling. Glad you're feeling better. We miss you!!!!
Dear Evan, I have just looked at all of your pictures from your trip to CA. I can see that you had a wonderful!!! time and got to see old friends and new friends. I also see that you went to some fun and exciting places. We were all so happy to see you and your parents.
Sarah is so clever to be able to put all these pictures together. As I was catching up on your latest info, I'm happy to see that you are feeling well now. We are thinking of you all. All our love.
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
great pics hes getting big dont get to big i wanna meet u
So cute!!
Hugs,
Crystal and Eva
Love the pictures! Evan you're amazing, such a great job! I'm showing your photos to Tate right now, he's giggling. Glad you're feeling better. We miss you!!!!
Love,
Corrie
Dear Evan, I have just looked at all of your pictures
from your trip to CA. I can see that you had a
wonderful!!! time and got to see old friends and new
friends. I also see that you went to some fun and
exciting places. We were all so happy to see you and
your parents.
Sarah is so clever to be able to put all these
pictures together. As I was catching up on your
latest info, I'm happy to see that you are feeling
well now. We are thinking of you all. All our love.
Aunt Lynn & Uncle Jim
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