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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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2007
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August
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- Spin-crazy
- Huckleberry picking
- New hat
- A new cousin...
- Ophthomology Appointment
- What a mess!
- Glasses are broken :(
- Recent Pictures
- Great to be "Average"
- Feeling better?
- The Year in Review
- Sinus infection
- Patching Progress: A new use for "no-nos"
- Maxwell, CA
- Slideshow of CA Trip Pictures
- New Glasses!
- Joyce
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August
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4 comments:
I can't veiw the picture for some reason its just a red x but I am sure you are adorable as always!!
Eva also loves things like that she is so silly!!
Hugs,
Crystal and Eva
Ok now it worked!! Very cute!! I love both those toys they are very cool, I can see why Evan like them so much.
Hugs,
Crystal and Eva
Great to see, I love watching the videos it enables you to see Evans progress rather than photos. Also its amazing how well charge children play flat...Amélie does exactly the same the fact she cant sit up properly doesnt stop her getting what she wants from her toys.
loved it...Amélie and Les x
So cute! You are a crazy lil man Mr. Evan! I am so glad you are doing so well.
(sorry I haven't posted in a while- been super busy. I was finally able to update our blog this week and catch up with all my amazing CHARGErs!)
Love Jennifer
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