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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
5 comments:
That is so adorable way to go Evan!!
Hugs,
Crystal and Eva
Great swinging, Evan--you're going really high there! Super job!!
Hugs,
Leslie & Katie
WOW! WOW! WOW! That is truly, absolutely incredible! I just love how he stops and starts all by himself...AND got in by himself! Seriously, very impressive!
Dear Evan, What fun you will have with that swing. I used to love to swing. Now I love to rock in a rocking chair. I hope you are feeling better. Love to you all, Lynn HAPPY NEW YEAR!!!!
Swing...ing! What fun for you Evan! Soon it will be time for Daddy to put up the old swing set and you shall have lots of fun this spring and summer. Grandpa was so thrilled and pleased when you shared your favorite puzzle pieces with him. We like your new tricks. Love, Grandma & Grandpa Key
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