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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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2008
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April
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13 comments:
HURRAY FOR EVAN!!!!
First come the tottering steps, next come the running stampede.
Watching that video brought tears to my eyes. What a proud accomplishment!
GO EVAN!
~Kim Main
Wow EVAN!!! That is great Soon you will be running all over the house.
Michelle Knowlton
Wow! Let's just say the tears are sure coming right now! Those first steps are so exciting and will open up a whole new world for you. Way to go big guy, I am SO proud of you.
-Maya's Mommy
Way to go Evan!!!! Great job!!!
Hugs,
Crystal and Eva
HIP, HIP, HARRAY FOR EVAN!!!!!!
YAY EVAN!!!! So excited for all of you! :) WOO HOO!
Plus, Sarah...how did you get the Signing Times music? Love that song and so perfect for the videos of our kiddos!
Way to go Evan! Such a big accomplishment! We are all so proud of you!
So Evan is getting all excited and ready to Walk for Babies in about another week. Way to go Little Evan. Everyone has been waiting for this special momment and you just make it look so easy!
Love, Grandma & Grandpa
Wow, Evan, look at you!!! How exciting! Big high fives to you!!
Hugs,
Leslie & Katie
Evan, way to go!
Congratulations! what an achievement. Cx
This is so awesome!!! Hope mommy's got her running shoes ready! Keep up the great progress Evan.
Shelly & Luke
Awesome!! We are so excited & proud of you Evan! (and Mom and Dad!!)
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