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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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2008
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April
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- March for Babies--Today is Walk Day
- Missing Grandma Anna
- High-Grandma-Five
- Countdown to March for Babies
- Research suggests factors other than gestational a...
- I'm Dreaming of a White...April?
- Are you ready for this?
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April
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3 comments:
Love that picture! And Ben has those same PJ's too. Our boys have a very similar wardrobe.
Very cute picture!!!
Hugs,
Crystal and Eva
Wow! I am way behind on my reading! Evan!! I couldn't believe my eyes. That walking is fabulous. Great Job!
High fiving is such a fun, social skill. How cute that your mom caught a pic of it!
Guess I better keep up with my reading or you may have run a marathon the next time I check in.
Love to all of you from MO,
Corrie
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