Subscribe to:
Post Comments (Atom)
What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
Happy Halloween to you too Evan - you are the cutest firefighter I know!
Happy Halloween little Evan!
Hope you had a good time trick-or-treating this year. Glad it wasn't too cold this evening. We didn't have much more than 20 kids.
You are such a cute fireman and you can rescue me anytime!
Love, Grandma & Grandpa Key
Evan, I love your costume. I wish I would have found a Fireboy costume for Ben. I love it.
What an awsome fireman!!
Hugs,
Crystal and Eva
Post a Comment