What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
10 comments:
Wow! Good gob, Evan. You're getting around very quickly!
Great job, Evan!
Even if you're not a caterpillar anymore, you are still the cutest little bug we have ever seen. Finally, you think walking is more fun than your favorite puzzle pieces. You are simply FANTASTIC at walking Evan!
Much Love,
Grandma Key
WOW! WOW! WOW! That is fabulous you guys! Congrats to all three of you...I know it's been quite the journey!
For some reason, Maxwell recently has regressed quite a bit with "independent walking" (between people)...but I'm sure he'll get back in the swings of things soon enough.
ENJOY this great success...soooooo proud of you!
How wonderful, amazing, inspiring and funny is this! Got quite dizzy watching the warm up and then he was off... it really is the most beautiful sight to watch him walk, eh, almost run around!
WOW! Awesome walking Evan...we are all so proud of you. I think you and Maya will need to have to play chase the next time you get together. Really, your balance is just improving SO MUCH! WAY TO GO!
Wow, look at you go, Evan!! Great job! Looks like your mommy is going to have to hang her pictures a little higher now! :-)
Evan, what a little man you are. Very inspiring to see! Keep up all the great progress.
Huge applause and standing ovation!!! Way to GO, Evan!!! The song was a perfect choice. Well done! Congratulations! Hugs! ~Kim Main
Great job Evan!!
Hugs,
Crystal and Eva
Post a Comment