Not much has changed here. Yesterday was Evan's last day of steroid syrup, and he is not any better. His pediatrician is arranging a repeat chest xray this morning, and we'll go from there. This bug is seriously kicking all of our behinds...we'll be so glad when it's over. I'm staying home from work tomorrow. That's pretty sick...I haven't called in sick to work since Evan was born.
1:30 pm - Update
We are back from the hospital. Evan's chest xray looked good, and Dr. Oldham felt his breathing was not labored or wheezy, and his ears were clear. Evan really perked up for Dr. Oldham--he was walking all around the imaging waiting area, looking up at the lights and giggling (not the same boy that this morning had us making the worried after-hours page...). Dr. Oldham didn't think any more prednisone was necessary, and said we could use our discretion on the albuterol. He thought getting up and walking around was the best thing for Evan--it would expand his lungs and really help him cough up the extra mucus. In fact, he suggested that we take Evan outside for a walk when we got home, provided Jeremy & I felt up to it (we were a sight I'm sure, both decked out in surgical masks and we brought our own hand sanitizer). Jeremy and I both got prescriptions for azithromycin (it is likely we have secondary bronchitis, and there is no sense in us passing bronchitis back to Evan now that he's getting well--Evan is already on antibiotics). All-in-all, a very productive visit.
We stopped at Rite-Aid to pick up our drugs, and the trip to town wore Evan out. He's napping right now. We'll see about that walk when he wakes up.
I also wanted to clarify I completely understand my family's not wanting to come share our germs on Thanksgiving Day. They have called once or twice every single day this weekend to check on us, and suggest some helpful home remedies (I'm still working on getting the house more humidified, Mom...). I did not mean to sound bitter in my earlier posts--can we just say this bug is keeping me from thinking clearly???
What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
thinking of you and wishing you comfort and health. love, amy and max
Hope all three of you feel better soon!
I am glad you are feeling a bit better Evan and I hope you all continue to get better soon.
Hugs,
Crystal and Eva
We were so glad to hear that Evan is on the mend and that you two were able to get some antibiotics that will make you start feeling better in a day or so. I also called Grandma Wren and she said that Grandpa is not doing so well and she may have to take him into the hospital this afternoon. I will call later to make sure he is doing O.K. Well, Lesson plans are calling. Take care and Love ya!
Grandpa & Grandma Key
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