This is a rather popular post title in our circle. And it fits here too--Evan still is pretty sick. Another day spent sacked out on the couch in PJs. He won't be going to preschool again tomorrow, making it an even week he's missed. He has a barky little cough, green snot, a fever (waxing and waning now) and diarrhea. Fortunately, he does not have junky lungs or bad oxygen sats.
It was really nice out this evening, so we bundled Evan up and loaded him in his stroller. We thought some fresh air might lift his spirits...and it did for the first half of the walk. All of a sudden he got really upset, but he didn't yell or make any noise. The tears started flowing, his lower lip quivered, and he started wringing his hands--it was very sad to see. We pushed him back home at a pretty brisk pace, feeling like awful parents for coming up with such a dumb idea in the first place.
What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
AAWW Poor Evan I hope he feels better soon!!
Hugs,
Crystal and Eva
Hope you are feeling better soon, Evan.
AWWW Evan I really hope you start feeling better soon!
God Bless,
Brian, Sarah, and Caleb Hlebiczki
Sending you healthy thoughts and prayers (and I love the bubble shots).
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