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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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2007
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August
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- Spin-crazy
- Huckleberry picking
- New hat
- A new cousin...
- Ophthomology Appointment
- What a mess!
- Glasses are broken :(
- Recent Pictures
- Great to be "Average"
- Feeling better?
- The Year in Review
- Sinus infection
- Patching Progress: A new use for "no-nos"
- Maxwell, CA
- Slideshow of CA Trip Pictures
- New Glasses!
- Joyce
- We're Back...
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August
(18)
3 comments:
I love it, thanks for posting! Mind emailing them to me so I can print off (better quality than off the web)? Thanks!!!
Thats so cool!!!!
Crystal and Eva
Hey Everyone!
I'm just getting caught up from the trip, I've hardly been online! What a treat to see Evan in his new glasses looking dapper! The slide show was fun too. I already miss everyone. So nice to be with others who get it.
Glad the rest of your trip was well.
Take care!
Love,
Corrie
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