The Life of Evan...: Evan Almighty

Thursday, October 4, 2007

Evan Almighty

Eva's mom, Crystal, has set up an online store with stuff like sweatshirts, mugs, calendars to raise money for the CHARGE Syndrome Foundation. One of the kiddos she has featured is Evan--we love his sweatshirt, and will have to order one for him soon.

If you are interested in seeing any of the other products Crystal has, the site is
www.cafepress.com/CHARGEingStrong

Great job Crystal!

1 comment:

Crystal M. said...: You do know that Evan, Max, Alissa and Eva are 4 of my favorite little CHARGErs!!! Hugs to all,
Crystal and Eva; October 9, 2007 at 9:18 AM

Post a Comment

What is CHARGE???

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

The Life of Evan...

Thursday, October 4, 2007

Evan Almighty

1 comment:

What is CHARGE???

My Friends and Other Favorite Sites...

Followers

Blog Archive

About Me

Visitors since March 2008