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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
4 comments:
Happy Halloween Evan!! You are one cute little monkey!!
Hugs and Bananas,
Crystal and Eva
Happy Halloween from Grandma & Grandpa Key!
Wish you were closer to come to our house for a treat, a big hug and lots of monkey kisses. You are just too cute! We love you and will see you soon!
Evan, you make a cute monkey! Hope you had a good Halloween!
Hugs,
Leslie & Katie
I love monkeys! You are the sweetest, cutest monkey I saw this Halloween (believe it our not I saw a few).
Love Jenn
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