The Life of Evan...: G-tube

Friday, July 4, 2008

G-tube

Evan is very interested in his g-tube right now. He will pull off the cap when it's time to eat (or sometimes just because), and he will pull the end of the vent tube towards his stomach and try to connect it. He also loves to roll up his shirt and look at the g-tube, or show it off.

Let me show you...

There it is--my handsome tummy!

2 comments:

Anonymous said...: I loved the pictures of the hens & chicks. They do resembele fireworks in your photos. And, that beaufiful little tummy. The kiddy-bugs are coming. I bet all that visiting yesterday made everyone extra tired today. I know I'm moving slow, but it was really nice to see family members that we only get to see once a year. Have a restful day.
Love, Grandma Key; July 6, 2008 at 11:22 AM
Crystal M. said...: What an adorable little tummy!!
Hugs,
Crystal and Eva; July 6, 2008 at 6:00 PM

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What is CHARGE???

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

The Life of Evan...

Friday, July 4, 2008

G-tube

2 comments:

What is CHARGE???

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