Here is video of Evan's first trips down big-boy slides all by himself. Note: the leisurely pace of the first slide did not prepare us for the speed of the second one; Evan was more scared than hurt (lots of padding at the bottom of the slide) and was ready to go again in no time.
What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
2 comments:
A lovely series of photos and videos and I agree, the slide shot, your new favourite, is wonderful. Enjoy summer! Cx
This video is the best! It cracked me up:) I watched it about three times. Evan reminds me so much of Ben in his actions. My favorite is Evan's arms spread eagle once he realized the slide was taking him for a ride and he couldn't grab on.
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