As I started typing this post, I happened to glance at the clock--it was 1:38 in the afternoon--exactly the hour and minute Evan was born! Happy 3rd Birthday to our sweet little Pookie. We love you so much :)
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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
2 comments:
Happy happy happy birthday Evan! We are so proud to know you and call you our friend! We love you big guy!
P.S. Can you come over and give Max some tips on enjoying water??? PLEASE! :)
Love, Amy and Mighty Max
HAPPY BIRTHDAY EVAN!!!!! Hope you had a great day and got lots of presents!!
Hugs,
Crystal and Eva
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