Saturday, January 12, 2008
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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
3 comments:
How wonderful, all our snow is gone, not that I want more so please do not send us anymore...hee hee!!
Hugs,
Crystal and Eva
We have snow also, but ours dosn't look like as much fun as yours. We love the great pictures of family fun. I don't know what made Evan smile, but that just goes to show, that Evan is the cutiest "snowboy" ever.
Love, Grandma & Grandpa Key
Hi Evan! Awwwwwwwwwww. Love all the snow pics.....I read your post about the salad. Sorry. I've had a major mess happen too. Its just something that happens and guess what....it wont be the last time for us......;)
Jealous of snow.
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