Thursday, December 18, 2008

The weather outside is frightful...

...but inside is nice and toasty. Mommy has been busy taking pictures of me for our Christmas card. She wanted to post her two favorites (that didn't actually make it on the card).

Why mommy, are you making me hold this giant letter Y?

This is Evan tonight (post surgery)--pretty handsome boy :)


I got a kick out of this "gift" courtesy of the Washington State Department of Health. Obviously, the person who sent this out knows nothing about our child. To begin with, Evan is 3 1/2 years old now...there would be quite a few catch up entries if I were to try and use this booklet.

The best part is how much room they allow for notes! Granted, my record-keeping is probably taken to the extreme (I have two big three-ring binders full of Evan's test results, reports from specialists, evaluations, etc). I don't think Evan has ever had a well-child visit in his life--we always have some sort of problem that needs investigated. But I find it hard to believe there would be enough room to record much of anything for a typical child!

Wednesday, December 17, 2008

Successful Surgery

The boys made it home around 10 pm last night. Evan did not appear to be in any discomfort, and was wired (I guess we know the answer to the question "Does 4 hours of general anesthetic equal a nap?"). He wanted to walk the loop around the kitchen with Jeremy, and didn't go to sleep until 3 am this morning!

The urology surgery was uneventful, and he woke up from anesthesia sounding pretty junky (normal for him), but otherwise fine. I understand he was combative during the pre-op, so much so that he was given some sedative. He immediately turned into "noodle boy" and they were even able to do the CT and MRI with just the sedative.

The hearing test results were interesting. There was no response aided or unaided on the right side (the side with his bendy ear). Aided on the left side, the results showed a moderate hearing loss. The cochlea appears to be functioning better than was thought--it's the middle ear that isn't working properly. This is interesting, as we don't really notice any difference in Evan's behavior with his aid on--he doesn't act like he hears anything. The bone conduction aid was mentioned again, which we did try briefly and also didn't seem to make much of a difference. We will know more about how we are going to proceed after Evan's appointment with Dr. Sie in February (she would be Evan's surgeon for the implant).

Tuesday, December 16, 2008

Surgery Today

I didn't post about this earlier (I didn't want to jinx it), but Evan is having surgery at Children's today. It is the long awaited urology procedure along with testing to determine cochlear implant candidacy (MRI, CT, and BAER hearing test).

The boys checked in at Children's at 11:30 this morning. I just called Jeremy to see if there were any updates, but went right to his voicemail. Knowing how difficult cell reception at the hospital is, I'm not surprised. I'll update when I know more.


I talked to Jeremy around 4:30. Evan had his CT and MRI done under sedation, before going under general anesthesia. After the scans were finished, he had the urology surgery which took around 2 hours. Dr. Lendvey said he did very well, and was "like a rock" respiratory-wise during the surgery (Evan has had issues with keeping his oxygen levels up under anesthesia in the past). At the time Jeremy called, Evan was having his hearing tested. He would probably go to recovery around 5:00, and if all went well they would get to leave Children's around 6:00.

Friday, December 12, 2008


Oh yes. I pushed the chair over here and climbed up into it all by myself.

Oh boy. I'm contemplating all the things I can get my hands on now. With this new skill, the possibilities are endless!

Monday, December 1, 2008

Someone is feeling better today :)

Check out my mischevious grin from this morning. Mommy had just finished taming my snarl of curls with a wet comb, and wanted to get a picture of me with my hair all slicked back. It's not a great picture of my hair, but mommy loves my huge smile.