Hmmmm. I thought when Evan let me put the patch, then the hearing aids, and finally his glasses--without immediately pulling them off--it was just a little too good to be true.
I have almost an identical picture of Kennedy that had almost the same caption (including the "oh my") on her old web page. I remember those days so well the picture just after it is here at this link...notice how happy she is AFTER she got her patch off, little turkey..
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
3 comments:
Oh Evan you are so cute and I know Eva would pull the samething...LOL!
Hugs,
Crystal and Eva
This is just too cute...as we say in the UK catching flies...Evan I want to put my hands through the screen and pinch those cheeks...
Love Les and Amélie xxxx
I have almost an identical picture of Kennedy that had almost the same caption (including the "oh my") on her old web page. I remember those days so well the picture just after it is here at this link...notice how happy she is AFTER she got her patch off, little turkey..
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