Evan's new pair of glasses came in today. I didn't get a chance to get a picture of them on his face today, but here is what they look like. I will keep everyone posted on how it goes this time around.
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What is CHARGE???
CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.
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5 comments:
Thodr look like he could go to town on those and they won't brake, I can't wait to see them on him.
Hugs,
Crystal and Eva
Hi Evan,
I love your new glasses and will enjoy seeing you wear them. I know they will help. I have been wearing my glasses almost 50 years and am still so thankful they help me see clearly every day.
Love, Grandma Anna
They are really cute - can't wait to see them on him!
Evan, your new glasses are too cute! I'm sure they look amazing on you too. Hopefully these glasses can take the wear and tear of an active tot like Evan.
PS, looking at your glasses, our have a built in bridge..I'll see if I can take a picture of them from the backside so you can see. email me off list Liz@alizard.com
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